The Conscious Queen

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My life has been a roller coaster of ups and downs. I was diagnosed with Systemic Juvenile Rheumatoid Arthritis (300,000 children are diagnosed with Idiopathic JRA) when I was just six months old. Many people believe that arthritis only affects the joints, but the reality of is that it affects your whole world. My arthritis has not only affected my joints, but also my organs, mentality, and our life. When I was ten I was two weeks away from having a stem cell transplant. Our life was turned upside down, I was diagnosed with sepsis. I ended up being a coma for two months and rehabilitation for another two. Sepsis caused my toes and left fingertips to be necrotic, making them turn blue and fall off all in a span of a year. While I was in a coma the doctors ended up doing an exploratory surgery on my stomach to see if they could find the cause of sepsis, but they did not find anything so they stapled my stomach back together. They took the staples out too early and my stomach reopened. I needed a wound VAC on for a year to close it. During the span of 1-3 years of recuperating my mom was the one who was having to clean my wounds when I was home. My mom was the one that had to unwrap, clean and rewrap my necrosis limbs and my wound VAC. She was the one who saw the pain and struggle on my face every day. When I was thirteen and had my left hip totally replaced she was the one to do physical and occupational therapy with me (not the licensed practitioners) while trying to keep me caught up at school. She was doing all this while being my PCA and only making $17,000 a year while trying to raise me, my two younger brothers, and an infant. When being in hospitals, group homes, or long term care facilities, you do not always get the right care you need or want. I feel that if you are not being cared for the way you need to be then you can not proporly care for someone else. We came up with caregiver crates because everyone deserves to sit back and relax just for a little bit in their life. Whether that come from caregiver crates or the MECA Radical Self Love Network so be it. The reason that most of these places or people do not always understand is because they do not receive the right education. They need to understand not just how to “take care” of someone, but also the mentality side of it. They need the right education to show them how to properly care for someone with disabilities or an elderly person. I want to help the people using MECA be able to have the same opportunities I did while getting the proper daily care. MECA I hope will give people what they need and want for health care, choices of care and education.
Tiers
Books and their cases
$2 or more per creation
Get to reading about the books I love
Life Long Journey
$3 or more per creation
Get to reading about my life and journey with juvenile rheumatoid arthritis
Photographs of life
$5 or more per creation
Purchase the some pictures I have taken
My life has been a roller coaster of ups and downs. I was diagnosed with Systemic Juvenile Rheumatoid Arthritis (300,000 children are diagnosed with Idiopathic JRA) when I was just six months old. Many people believe that arthritis only affects the joints, but the reality of is that it affects your whole world. My arthritis has not only affected my joints, but also my organs, mentality, and our life. When I was ten I was two weeks away from having a stem cell transplant. Our life was turned upside down, I was diagnosed with sepsis. I ended up being a coma for two months and rehabilitation for another two. Sepsis caused my toes and left fingertips to be necrotic, making them turn blue and fall off all in a span of a year. While I was in a coma the doctors ended up doing an exploratory surgery on my stomach to see if they could find the cause of sepsis, but they did not find anything so they stapled my stomach back together. They took the staples out too early and my stomach reopened. I needed a wound VAC on for a year to close it. During the span of 1-3 years of recuperating my mom was the one who was having to clean my wounds when I was home. My mom was the one that had to unwrap, clean and rewrap my necrosis limbs and my wound VAC. She was the one who saw the pain and struggle on my face every day. When I was thirteen and had my left hip totally replaced she was the one to do physical and occupational therapy with me (not the licensed practitioners) while trying to keep me caught up at school. She was doing all this while being my PCA and only making $17,000 a year while trying to raise me, my two younger brothers, and an infant. When being in hospitals, group homes, or long term care facilities, you do not always get the right care you need or want. I feel that if you are not being cared for the way you need to be then you can not proporly care for someone else. We came up with caregiver crates because everyone deserves to sit back and relax just for a little bit in their life. Whether that come from caregiver crates or the MECA Radical Self Love Network so be it. The reason that most of these places or people do not always understand is because they do not receive the right education. They need to understand not just how to “take care” of someone, but also the mentality side of it. They need the right education to show them how to properly care for someone with disabilities or an elderly person. I want to help the people using MECA be able to have the same opportunities I did while getting the proper daily care. MECA I hope will give people what they need and want for health care, choices of care and education.

Recent posts by The Conscious Queen

Tiers
Books and their cases
$2 or more per creation
Get to reading about the books I love
Life Long Journey
$3 or more per creation
Get to reading about my life and journey with juvenile rheumatoid arthritis
Photographs of life
$5 or more per creation
Purchase the some pictures I have taken