Onno Faber

is creating Tools and projects to accelerate treatments for rare diseases.
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$5
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- Thanks for you support!

- Updates on my work through my newsletter and youtube channel

Champion
$15
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- Get early access to videos, review articles before they get published

- Access to my discord channel to help with new ideas

Includes Discord rewards
Unicorn
$100
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- A signed t-shirt with "more money more drugs"

- Get early access to videos, review articles before they get published

- Access to my discord channel to help with new ideas

Includes Discord rewards

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patron

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About Onno Faber

I’m Onno. I’ve been solving problems since I was a kid. I’m an engineer, designer and entrepreneur.

A few years ago I’ve been diagnosed with a rare genetic disease that causes tumors to grow in my central nervous system, which puts me at risk for losing my hearing, eyesight and mobility. Sounds scary? I can tell you, it is! However, at this point I met so many other patients –of which a lot of them are young kids– in a much worse physical condition than I currently am. After I got diagnosed I quickly decided I want to devote my energy, time and resources to help accelerate treatments for this condition, and by doing that potentially help many other rare diseases as well. You may not know this, but rare diseases are very common. 1 out of 10 people have one of the 7000 identified rare diseases, and about half of them are kids!

My mission is to help advance therapies for patients with a rare disease, like the one I have. I do this using my skills and background in entrepreneurship, technology, and design to build tools and infrastructure that creates a structural change. I am working on exploring, generating, prototyping and building out new ideas which should be embedded in the real world. At the moment, I’m volunteering in a research lab at UCLA to identify the next set of problems I can contribute to.

By becoming my Patreon supporter you can help me to continue to work on this mission and continuously keep starting, developing and maturing new projects. I communicate openly about my journey, aiming to inspire others and creating a big movement. Any problems in life we encounter are simultaneously an opportunity to create positive change. Problems are solved by hard work and determination. Thank you for being a Patreon supporter and helping me to solve these problems!
Goals
$5 of $1,000 per month
When I reach this goal, I can hire support for creating better videos and podcasts.
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Recent posts by Onno Faber