Arachnoiditis Awareness Month~July
July is Arachnoiditis Awareness Month 

I created the Art For Arachnoiditis Project to Empower fellow Survivors via participation in the Arts. Life with Arachnoiditis is a daily challenge. At the Art For Arachnoiditis Project we express this process through the art as we share the experiences and resources which help us cope and improve our quality of life. 

Started  at SheilaLynnK Art Studio in March 2014, as a one-to-one Survivor Portrait Project, THE ART FOR ARACHNIODITIS PROJECT has grown into a Charitable Creative Wellness Art Project serving Arachnoiditis Survivors around the world. "The Website for Survivors, served 93 Countries in 2015." (Wordpress Report)

July 2017 Art for Arachnoiditis Project News and Updates 

Tax deductible contributions to the Art for Arachnoiditis Project can be made via my fiscal sponsor, The New York Foundation for the Arts.  

 [Photo provided by staff photographer at Senator Catherine Young's office. Joining other states in the nation, with Dedicated Assistance from Senator Catherine Young; the Governor of New York State proclaimed July to be Arachnoiditis Awareness Month.
Memorializing Governor Andrew M. Cuomo to proclaim July 2016 as Arachnoiditis Awareness Month in the State of New York and presented to Sheila L. Kalkbrenner at the Art For Arachnoditis Project. J3551 ]

Arachnoiditis is a spinal cord injury caused by the neurotoxins in spinal injections and invasive spinal procedures. 


A Message From the Arachnoiditis Society for Awareness & Prevention

Arachnoiditis is a spinal cord injury resulting in inflammation in the arachnoid layer of the spinal canal which results in the clumping or sticking of nerve roots inside the spinal fluid. The nerves adhere together resulting in multiple adverse neurological consequences.

Symptoms Include (But not limited to): Muscle Weakness, Muscle Wasting, Spasms, Tension, Immobility, Joint Stiffness, Uncontrollable twitching, Profuse Sweating, Nausea, Chronic Severe Intractable Pain, Difficulty Remembering Causes Include: Spinal or Epidural Injections (steroids, anesthetics, dyes, blood, other foreign matter), Multiple Lumbar Punctures, Spinal Surgery, Degenerative Disc Disease, Trauma, Infection


Why do I care? (The Short Version)

In 2007, at the age of 37, I received the wrong anesthetic for spinal anesthesia during a routine right knee arthroscopy. Local physicians were diligent in covering up this mistake (and others which occurred afterward) until the statute of limitations had passed. This error resulted in a period of life plagued by what I was later told could only be described as un-diagnosed chemical meningitis that eventually became Thoracic and Lumbar spinal arachnoiditis with additional consequential conditions.  These circumstances were eventually, (several years later, after the statute of limitations had passed) modestly and apologetically confirmed at University of Rochester Spinal Cord Injury Clinic. After this injury I was deemed un-employable due to this permanent injury. 

I am currently managing this condition with Creative Wellness Practices and the assistance of my pain management physician. 

More about my Arachnoiditis story. 

About the Featured Painting: 

Honesty & Hope (a.k.a. No Pain, No Gain)

 36"x36" Acrylic on stretched canvas

 This copyright protected painting participated in Art Takes Times Square 2012 via Artists Wanted (Now known as See.Me)
It is licensed for Gallery use at Pain
Featured in American News Report National Pain Report.September 2013
It is also featured as the Cover (with Essay p. 194) in Volume 28, Number 3, 2014 of The Journal of Pain & Palliative Care
This last piece in the Facing Phases Series (2009-2012) is dedicated to fellow adhesive arachnoiditis patients and the support networks that keep them going. 


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