Apart from the fact that people with Lyme disease usually do make a long journey, it also has a great influence on the people in their immediate surroundings. The closer the relationship with the Heroes - author Huib Kraaijeveld refuses to use the word 'patient' - the bigger the consequences of the disease are for their companions. Yet also the bigger their impact can be on the journey, as they are aware of their roles and capabilities.
As an involved traveling companion, I went looking for the ins and outs, because I wanted to know what happened to my friend and what I could do to help her. The latter proved to be very necessary, because often the Hero lacks energy and perspective. Lyme absorbs you in every way: physically, emotionally, financially and time-wise.
Chronic Lyme is a situation marked by prolonged uncertainty, which can lead to both desperation and to discovery and togetherness. The choices we make appear to be quite substantial.
After I had read 'Shifting the Lyme Paradigm', it became clear to me that there is a whole world hidden behind Lyme. It is as an iceberg, of which only the top is visible. But if you go into it deeper, there is more and more that surfaces. The unearthing of all facets of Lyme disease is almost impossible on your own. For that you need other people: family, friends or a pioneer such as Huib.
For me, therefore the following statement expresses the essence of his book: "when ‘I’ is replaced by ‘we’, even illness becomes wellness."
Frans Vermeulen, journalist. The Netherlands
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