Spooniehacker

Spooniehacker

is creating a platform for kick-ass chronically ill people

2

patrons

$5

per month
Spooniehacker is an online magazine about life and love in chronic illness, produced by and for chronically ill people.

it was set up by a couple of chronically ill journalists who really missed making magazines, and wanted to produce something that spoke to their own lives and experiences, that they could do from their beds and around their symptoms.

Spooniehackers are chronically ill people who refuse to give up, shut up or disappear, despite pressure from society to do so. Pushed into impossible situations, told we are burdens or liars or it’s all in our heads, we find ways to hack systems – including our own bodies – in order to find brilliant new ways to live and connect with each other.

The term combines the word ‘spoonie’, which comes from Christine Miserandino’s Spoon Theory, and the idea of ‘life hacks’. It represents the idea that chronically ill and disabled people are the ultimate lifehackers, constantly having to invent unique ways of surviving and thriving in a often inaccessible and stigmatising world.

We want to celebrate and promote the creativity and resilience of spoonies with content covering everything from sex and relationships to style to politics to spoonie hacks to reviews - and all contributors are paid (which shouldn't be unusual, and yet it is).

The launch of Spooniehacker also sets an intention for a lasting positive change (both personal and collective) in narratives around what kind of person becomes chronically ill and what life in chronic illness can be like.

We're always interested in hearing from people who'd like to contribute - whether text, video, audio, illustration or photography. However, as the team currently consists of just two spoonies who are short on both spoons and cash, we are only be able to commission features in small numbers.

We aim to raise money from a variety of sources to (in order of priority): 1) increase the number of commissions we can make per month; 2) increase how much we pay per contribution; 3) cover the general running costs of the site; 4) get our initial investment back; and (finally) 5) get paid for our work ourselves. All Patreon pledges will only ever be used to commission site contributions and cover general site running costs, however. 

If you have the money to spare, why not pledge to us so you can fund the creation of unique, honest content that treats chronic illness and disability as a normal human experience and enable more spoonies to get a platform and get paid? Currently if you pledge you'll get a shoutout on our social media accounts if you want one, a permanent link on our website as one of our first supporters, and access to the Patreon forums where you can have direct input into the development of the mag.

Tiers
Show your support, get a spoonie badge!
$3 or more per month

Only one tier at present - just the price of a coffee, to show us you think Spooniehacker is something there's a need for. Currently if you sign up at this level we'll send you a cute li'l badge by Chronically Divine - you can choose from a selection we have in stock - once they're gone, they're gone, though!


This will also get you into the comments and stream on Patreon, so you can have direct input into the magazine and ask us any questions you want to.


We'll also give you a shoutout on our Twitter and Insta accounts (if you want it - let us know your handles if so!) and a permanent link on our website as one of our first contributors (again, let us know where you want the link to go to).


If you only want to make one donation, just sign up and then cancel after the first payment has been taken. It's all gratefully received and we understand that when you're disabled/chronically ill, income is often low and/or unpredictable.


And of course, if you have the resources and wanna pay more, that would be AMAZING.

Spooniehacker is an online magazine about life and love in chronic illness, produced by and for chronically ill people.

it was set up by a couple of chronically ill journalists who really missed making magazines, and wanted to produce something that spoke to their own lives and experiences, that they could do from their beds and around their symptoms.

Spooniehackers are chronically ill people who refuse to give up, shut up or disappear, despite pressure from society to do so. Pushed into impossible situations, told we are burdens or liars or it’s all in our heads, we find ways to hack systems – including our own bodies – in order to find brilliant new ways to live and connect with each other.

The term combines the word ‘spoonie’, which comes from Christine Miserandino’s Spoon Theory, and the idea of ‘life hacks’. It represents the idea that chronically ill and disabled people are the ultimate lifehackers, constantly having to invent unique ways of surviving and thriving in a often inaccessible and stigmatising world.

We want to celebrate and promote the creativity and resilience of spoonies with content covering everything from sex and relationships to style to politics to spoonie hacks to reviews - and all contributors are paid (which shouldn't be unusual, and yet it is).

The launch of Spooniehacker also sets an intention for a lasting positive change (both personal and collective) in narratives around what kind of person becomes chronically ill and what life in chronic illness can be like.

We're always interested in hearing from people who'd like to contribute - whether text, video, audio, illustration or photography. However, as the team currently consists of just two spoonies who are short on both spoons and cash, we are only be able to commission features in small numbers.

We aim to raise money from a variety of sources to (in order of priority): 1) increase the number of commissions we can make per month; 2) increase how much we pay per contribution; 3) cover the general running costs of the site; 4) get our initial investment back; and (finally) 5) get paid for our work ourselves. All Patreon pledges will only ever be used to commission site contributions and cover general site running costs, however. 

If you have the money to spare, why not pledge to us so you can fund the creation of unique, honest content that treats chronic illness and disability as a normal human experience and enable more spoonies to get a platform and get paid? Currently if you pledge you'll get a shoutout on our social media accounts if you want one, a permanent link on our website as one of our first supporters, and access to the Patreon forums where you can have direct input into the development of the mag.

Recent posts by Spooniehacker

Tiers
Show your support, get a spoonie badge!
$3 or more per month

Only one tier at present - just the price of a coffee, to show us you think Spooniehacker is something there's a need for. Currently if you sign up at this level we'll send you a cute li'l badge by Chronically Divine - you can choose from a selection we have in stock - once they're gone, they're gone, though!


This will also get you into the comments and stream on Patreon, so you can have direct input into the magazine and ask us any questions you want to.


We'll also give you a shoutout on our Twitter and Insta accounts (if you want it - let us know your handles if so!) and a permanent link on our website as one of our first contributors (again, let us know where you want the link to go to).


If you only want to make one donation, just sign up and then cancel after the first payment has been taken. It's all gratefully received and we understand that when you're disabled/chronically ill, income is often low and/or unpredictable.


And of course, if you have the resources and wanna pay more, that would be AMAZING.