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About a year ago I started on a Journey that would forever change my life I found out that I had a condition called Acromegaly a form of Gigantism.  Rewind a year previous to that I found out that I had this rare desease in the form of a tumor in my head. A Macro Adenoma of the pituitary that’s what caused all these problems pain discomfort fatigue dizziness numbness vision and they needed to get my growth hormone under control and it was going to involve a variety of meds surgery and eventually radiation to remove the tumor. REMOVE THE TUMOR they didn’t really tell me they weren’t going to be able to remove it but the term that came to their lips after the surgery was debulked the tumor anyway now I’m here and I still have this thing in my head and found myself not able to talk to anyone with this rare desease and turned on the camera.
About a year ago I started on a Journey that would forever change my life I found out that I had a condition called Acromegaly a form of Gigantism.  Rewind a year previous to that I found out that I had this rare desease in the form of a tumor in my head. A Macro Adenoma of the pituitary that’s what caused all these problems pain discomfort fatigue dizziness numbness vision and they needed to get my growth hormone under control and it was going to involve a variety of meds surgery and eventually radiation to remove the tumor. REMOVE THE TUMOR they didn’t really tell me they weren’t going to be able to remove it but the term that came to their lips after the surgery was debulked the tumor anyway now I’m here and I still have this thing in my head and found myself not able to talk to anyone with this rare desease and turned on the camera.

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