Battling Chronic stage Ehler's-Danlos Syndrome and have surpassed life expectancy. I hope to continue doing so but my life is a daily battle with intense pain (internally and externally). Trying to get strong enough to make it to my doctor in Wales since the USA doesn't deal with this stage of the disease (and I should be dead). Am fighting for others and getting attention for this stage of the disease here in the States so we can have proper help/care. Before my life became such a fight, I adored my horses, acting, painting,writing, and following my dreams, like everyone else. Now, I hope to see others achieve their dreams until I leave this world for the next. Always keep fighting. I plan to sail my beautiful Titanic (body) until that iceberg...and I will gladly go down with my ship...even then, am I Jack or Rose? I hope I'm Rose.